Diagnostic errancy is devastating for individuals with rare diseases and their families. To understand her son’s differences, Mother Lioness relentlessly travels the African savannah.
Merlin is a cute feline. He lives in a South African village with his mother, a beautiful honey-coloured lioness. Merlin’s mother loves him very much. But Merlin does not look like an ordinary lion cub! He doesn’t even look like an ordinary cat! He gets lots of unfriendly looks and mean comments from others, because he looks different.
ABOUT THE AUTHORS
Medical secretary,
Sonia Goerger has been welcoming and meeting with numerous patients regarding genetics for many years. This interaction inspired her to create this series of books on ‘Children of Genetics’.
The books within this collection address challenges these patients may face on a daily basis, in simple terms and with endearing characters.
Graphic designer for several years,
Elodie Garcia is an author and illustrator of children’s books and comics. The delicacy of her line allows her to approach, in a gentle way, difficult subjects. By illustrating the ‘Children of Genetics book series, she hopes to help families facing a rare disease.
The
ARGAD Association (Association for Research in Genetics and Support for Families and Professionals of Dijon-Bourgogne) is a non-profit association under the 1901 law, created in September 2010. ARGAD engages in numerous activities: • Improving reception and care conditions for patients with rare diseases in Burgundy, within the Genetics Centre of Dijon CHU, • Raising awareness among health professionals in the Burgundy region, and amongst the general public regarding rare diseases, • Contributing to a better and improved training of health professionals involved in rare diseases, • And, supporting clinical and biological research activities in the field of genetic mutations associated with abnormalities in development and intellectual disabilities in Burgundy. To support the
ARGAD Association and its’ mission: http://www.translad.org/
Merlin is a cute feline. He lives in a South African village with his mother, a beautiful honey-coloured lioness. Merlin’s mother loves him very much. But Merlin does not look like an ordinary lion cub! He doesn’t even look like an ordinary cat! He gets lots of unfriendly looks and mean comments from others, because he looks different.
ABOUT THE AUTHORS
Medical secretary,
Sonia Goerger has been welcoming and meeting with numerous patients regarding genetics for many years. This interaction inspired her to create this series of books on ‘Children of Genetics’.
The books within this collection address challenges these patients may face on a daily basis, in simple terms and with endearing characters.
Graphic designer for several years,
Elodie Garcia is an author and illustrator of children’s books and comics. The delicacy of her line allows her to approach, in a gentle way, difficult subjects. By illustrating the ‘Children of Genetics book series, she hopes to help families facing a rare disease.
The
ARGAD Association (Association for Research in Genetics and Support for Families and Professionals of Dijon-Bourgogne) is a non-profit association under the 1901 law, created in September 2010. ARGAD engages in numerous activities: • Improving reception and care conditions for patients with rare diseases in Burgundy, within the Genetics Centre of Dijon CHU, • Raising awareness among health professionals in the Burgundy region, and amongst the general public regarding rare diseases, • Contributing to a better and improved training of health professionals involved in rare diseases, • And, supporting clinical and biological research activities in the field of genetic mutations associated with abnormalities in development and intellectual disabilities in Burgundy. To support the
ARGAD Association and its’ mission: http://www.translad.org/
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Format EPUB ● Pages 32 ● ISBN 9782384271238 ● Taille du fichier 7.9 MB ● Maison d’édition Fondation Ipsen BookLab ● Pays BE ● Publié 2024 ● Téléchargeable 24 mois ● Devise EUR ● ID 9298961 ● Protection contre la copie DRM sociale
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