Claire Tester & Joy Blakeney 
Occupational Therapy and Duchenne Muscular Dystrophy 

This is a practical guide for Occupational Therapists and others who provide services to people who have Duchenne muscular dystrophy. The goal of the book is to deepen the readers understanding of the support that occupational therapists can offer to families who are affected by this condition. Written by experienced occupational therapists with a special interest in Duchenne muscular dystrophy. The book will provide information and support to therapists who may be working in isolation, or who rarely work with this client group. It is for the experienced therapist as well as the student. Each chapter of this book gives a clear and comprehensive description of different aspects of occupational therapy assessments and interventions.

Inhoudsopgave

Contributors.

Preface.

Acknowledgements.

1 Duchenne Muscular Dystrophy: A Medical Overview (Alex
Howarth).

2 The Occupational Therapy Process (Kate Stone, with Claire
Tester and Mary Mc Cutcheon).

3 The Psychosocial and Emotional Impact of Duchenne Muscular
Dystrophy: Some Considerations (Claire Tester).

4 From our Point of View: From Young Men with Duchenne Muscular
Dystrophy, as Shared with Claire (Claire Tester).

5 Personal Activities of Daily Living (Alex Howarth, Ruth
Johnston, Heather Mc Andrew and Nicola Traynor).

6 Seating (Joy Blakeney and Ruth Johnston).

7 Moving and Handling (Kate Stone and Claire Tester).

8 Occupational Therapy in Education (Alex Howarth, Heather
Mc Andrew, Mary Mc Cutcheon and Nicola Traynor).

9 Learning and Behaviour Diffi culties (Claire
Tester).

10 Leisure and Play (Kate Stone).

11 Community Care (Kate Stone).

12 Housing Issues (Kate Stone).

13 Social Needs: An Overview (Claire Tester).

14 Employment (Kate Stone).

15 Transport (Kate Stone).

16 Bereavement and Anticipatory Grief (Claire
Tester).

17 The Role of the Hospice (Claire Tester).

18 In Conversation with Occupational Therapists (Claire
Tester).

19 The Future (Claire Tester and Dr Alison Wilcox).

Appendix I.

Appendix II.

Appendix III.

Appendix IV.

Appendix V.

Appendix VI.

Appendix VII.

Appendix VIII.

References.

Bibliography.

Index.

Over de auteur

Joy Blakeney, Dip COT, Senior Practitioner,
Paediatric Community Occupational Therapist, formerly of West
Lothian Council Social Work Department.

Alex Howarth, BSc Occupational Therapy, Senior
Paediatric Occupational Therapist, NHS Lothian University Hospitals
Division.

Ruth Johnston, BSc (Hons) Occupational Therapy,
Senior Occupational Therapist – Child Health, NHS Fife.

Heather Mc Andrew, BSc (Hons) Occupational Therapy,
Senior Paediatric Occupational Therapist, NHS Borders.

Mary Mc Cutcheon, Dip COT, Senior Paediatric
Occupational Therapist, formerly of Ashcraig School, Glasgow.

Kate Stone, Dip COT, MSc (Med Sci) in Palliative
Care, Senior Practitioner, Paediatric Community Occupational
Therapist, Inverclyde Council Social Work Services.

Claire Tester, Dip COT, PG Dip, AHP Consultant in
Cancer for Scotland, Scottish Executive on secondment from the
Children’s Hospice Association, Scotland (CHAS).

Nicola Traynor, BSc Occupational Therapy, Senior
Paediatric Occupational Therapist, NHS Lothian University Hospitals
Division.